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http://talesfromacigal.blogspot.com/2008/06/dear-deafread-editors.html

THURSDAY, JUNE 5, 2008

Dear DeafRead Editors:

Dear DeafRead Human Editors, JJ, Elizabeth, Amy, Carrie, Jared, and Tayler,

I am in discord. I’m frustrated and disappointed with this turn of events. As a deaf person, you have violated my trust and my respect. JJ left a comment on Ben’s blog. I have not heard anything from any other of the Human Editors. Here is my comment from Ben’s site:

“What is interesting is most of us CI bloggers don’t agree either. We have different opinions on CI, AVT, ASL and all, but we seem to be united in our support for Rachel.
At least you have this inside view from your friendship. That is great! I don’t have that. I have to go by what is posted.
Is this a plot to remove CI blogs from DeafRead? Since DeafSide has not happen. I don’t know. All I know is that it validates how my family and I were treated 37 years ago when my mom reached out to the Deaf Community and was turned away. Same views different times.”


I am asking each of you your answer to my comment. Thank you, Valerie

Civilization is a method of living and an attitude of equal respect for all people
Jane Addams, first woman Nobel Peace Prize Winner 1931

46 comments:

OCDAC said…
Deafread is not safe for people like you. Theres another aggregator that are very safe and very welcoming to people like you.

Richard

June 5, 2008 8:20 AM
Anonymous said…
ChrisH said…

Rachel agreed that the cochlear implant wording of the advertisement is necessarily offensive and it is changed. She is trying to hide her identity Deaf. 

Rachel called for helping because she threw her the Deafread. She is accusing deafread of discriminating cochlear implant. She never proved to the world she is still deaf without cochlear implant. 

I am sorry that I am not interested into becoming involved with CI deaf politics. I don’t blame on Rachel.

June 5, 2008 8:50 AM
SweetMind said…
OH PLEASE , give me a break after all I was destroyed by Audism and CIers’ nasty rude/ bigotry attitudes for ten years and plus CIer refused to have my respectful truthful comments after all they lied a lot about me then prevent me to say anything that is nothing new since I was a little gal. They are trying to make people believe how horrible beast lady I am.. Scoffs! I m very far from it.

So therefore I have no respect for some CIers with a stinky nasty attitude so they did it to themselves and don’t have any respect for any Deaf ASLAN people from day one that we born. Scoffs!

Mike Mc Connell, Jodie, Karen Mayes, Paula from hearing exchange and their own cult followers who OPPRESSED Me very badly that I already showed the evidences as far as I can you don’t give a hoot about it. They lied about me as well as they get away with it that is just like the rest of their cult followers who doesn’t have any great self esteem in themselves as well,That is who destroy deafnotes, deafchat, Deaf business, and the Deaf Leaders/Advocators/Deaf supporters.

NOTHING IS GOOD ABOUT BEING DEAF or having Deaf ASLAN people on this earth that hasn’t stopped it yet. That is what I am seeing it all my freaking life that you think I am happy with it.. HELL NO , I’ll stand up for what I strongly believe and fight for my and Deaf’s freaking rights.. Guess what, I got fired from job twice and walked out two jobs twice, and few jobs I quit as I fed up.. I am not ashamed because I knew I didnt do anything wrong in many ways. I could have become a RICH lady after I have too many violation laws by these people who doesnt have any respect for a Deaf person who could not hear the spoken language if you MIND.. Dont give me that crapola about CI device, it can help Deaf babies/children to hear. That s all full of crappola stories about miracle and cure from a start.

So are you telling me I am freaking Deaf lazy person.. IF so then up yours.

Yeah, try to wipe me and my comments out that is your easy way out to disrespect my freedom of speech with respect as usual. Scoffs!

CI is full of hoax and destroy our Deaf community s image on purpose as I can see it already that is not a big lie.. I already have those evidences . That’s why I don’t believe every word you have said. All they do is LIES LIES LIES LIES that will not change my mind because I knew the honest truth with me all along. Go kiss Cloggy, Rick48 aka CI pop, Boult as Ed Cantrell, Alex Chu’s bun who loves to destroy me as a Deaf person with HA experiences that I told the truth. I can speak and now refused to speak anymore because it causes me more problem with those AUDISM people who mislead and lied about me, my Deaf ears, and my own deaf voices that is not helpful for 65 percent of born deaf as is. I am able to hear but now I choose not to hear anymore because NO ONE ACCEPT ME as A Deaf Person so therefore it s too much lies about hearing devices for Deaf babies/children that I had been wearing it all my life that destroys me a completely whole person by YOUR OWN STINKY HUMAN CRUEL TREATMENT. Thats what it makes me anger to see the same old freaking nasty/cruel/oppression/discrimination/second class citizen/bigotry attitudes.

I strongly FEEL THAT AUDISM must out of Deaf community first. No more destroy our natural abilities and adaption of being deaf as is. 

QUIT whiner as I m seeing a lot lately that turns me off.. NOthing is successful for us to work together as well as I can see AGB organization and CI company wants this way and laugh at us because you are a big sucker and kiss their buns for their riches to make money and for yourself only. It is not a lifetime that makes you happy while you are the co dependency with those stupid junk devices.

Deaf people trapped into a black hole as always as I don’t see any improvement to respect any kind of Deaf people who born deaf as is. That is the biggest oppression and discrimination toward us for so many years.

NO ADA helps us all along since 1980 that hasn’t been changed much at all. 

Take a chill pill , will you please? 

It doesn’t matter anymore if I m or am not a nice or person that i m still getting the same inhuman cruel treatment from you Deafism/CIers/Audism ’s attitudes. PERIOD! I m different from many of you that I have always know that all my life.

SCOFFS! NESMUTH aka RICHARD ROHEM and TOM WILLARD, CIERS and CI Radicals with a big time of being so negative AUDISM . Time for you to grow up. Face the Deaf reality!

I RESPECT Deaf babies/children ’s rightful to have ASL and must do something about the damage of the whole Deaf babies and children s boundary that needs to be stopped since it s their own against Deaf babies/children s will. NO ONE HAS THE RIGHT TO conform/force them into a hearing children that is not gonna to be respectful at all for the rest of their life. 

I am seeing People with their own audist attitudes are screwing up their heads as usual. Thats why I am here to say something very bluntly because It s outrageous and nonsense. Also, people refused to accept the truth that is what I will not accept their severe mental illness, AUDISM thinks they can control us. NO way jose for me to deal with this anymore. SO BE IT!. 

DENIAL is the issue that you are having in your own Deaf inner soul all along.

Get a life!
SweetMind

June 5, 2008 9:01 AM
Anonymous said…
a lot of pain and anger among some Deaf people in the community is understandable. ChrisH and Sweetmind (seecomments above) clearly show their truefeelings of bitterness, anger, frustration, and most of all oppression by the hearing society. 

Their reactions and strong opinions are warranted, but I am so sorry that the CI Deaf community has to take the blow from some of our kind. 

You CI people including my son are paying the price for decades of oppression among my people. I am so sorry. But keep your chins up high and weather the storm. 

Warranted, Rachel’s attitude is a bit standoffish. She has that aua that she is “better than us the non-speaking Deaf”. So what! There are a whole bunch of ASL Deaf in my comunity who are such snobs, narrowminded, mean, and definitely think they are better than the oralists. 

Tayler and the DeafRead gang has wronged both sub communities within th greater d/Deaf community. 

Tayler has made history by practicing soft bigotry despite his denials. 

Keep your chins up and don’t give up on us as there are many wonderul culturally Deaf people who embrace you!

anna s

June 5, 2008 9:15 AM
Anonymous said…
Move to Hear-For-Life.org

How’s that? Would that make you feel better?

June 5, 2008 9:22 AM
Anonymous said…
ChrisH

Anna S,There are whole bunches of CI Deaf in your community who are such snobs, narrow-minded, mean, and definitely think they are better than ASL user.

You fail to teach your son how to use your voice because you are still Deaf and still ASL. I am sorry for your son didn’t choose CI when he is too young. I thanked to Matt Hamill is very skill at playing in mixed martial arts game when he doesn’t need to wear a helmet. 

This has nothing to do with ASL and Deaf community. you chose to hurt Deaf community.

June 5, 2008 9:40 AM
Valerie said…
To all,
Have I ever expressed myself to be “better than everyone else?” I am not for CI, D/d politics. I am embracing my deafness. These comments cause great pain.

June 5, 2008 9:51 AM
Valerie said…
Sweetmind,
Do you have this comment on cut and paste? I have seen this before and before. I am living my life, you need to either come up with something new or you get a life.

June 5, 2008 9:54 AM
Kim said…
Valerie,
I am feeling so much pain from this as well. I don’t see this as a CI against Deaf thing as much as “deaf” are unequal, disrespected, and not at all valued here. I’m right there with you. I had hoped the DeafRead editors would speak up. Their silence hurts more than Tayler’s action.

June 5, 2008 10:13 AM
Kim said…
Also– I’m shocked by some of the mean-spirited comments you’ve received. I guess now that Rachel is out of the picture, it’s open season on the other CI bloggers.

June 5, 2008 10:16 AM
Abbie said…
Sweetmind,

You tend to lose your point when you ramble on the way you do. By the time I read the third line of your comment I forget what you said.

This has nothing to do with deaf babies or ASL or the ADA law or cochlear implants! This is about Tayler and his asinine and hidden policies on Deafread.

Now my dear Valerie,

This is the way that it is done in the real world. People agree to disagree based on opinions but most of the time they don’t change their opinion of the person that they are. There is some people in my family I don’t care for but if they needed I’m there because i’m family. Same way here!

June 5, 2008 10:20 AM
Li-Li’s Mom said…
Sweetmind, I’ve seen your tired, meandering and generally incomprehensible rant against audism pasted elsewhere on deafread, alldeaf, in completely different contexts, as well. So to use your own words, apparently you ARE ‘a freaking Deaf lazy person’ who can’t do more than cut and paste.

I’ve read again and again how bitter so many deaf people are that their hearing parents didn’t integrate them into the Deaf community, don’t use ASL at home, or that some scary amorphous monster named agbad infiltrated their schools or their parent’s minds and stopped them from signing. They learned well: Deafread has now become the big bad monster slamming the door on hearing parents and their deaf children who might otherwise be exposed to ASL, to deaf culture, to other deaf people.

Valerie, I agree with your post completely! I don’t agree with its hard-line AVT philosophy, but Rachel’s site is a valuable resource and a great place to engage in the debate and learn from one another. And banning Rachel’s site is deafread’s loss: every day it reaches many, many parents of newly diagnosed deaf children who may now not come in contact with some of the amazing deaf b/vloggers.

I’m so eager to see how the editors respond to your question — I just don’t want to believe that they would sit by and watch Deafread close a door to a great big room filled with new parents considering CIs or those considering educational options, and limiting the opportunity to reach those people with the possibilities afforded by learning ASL.

June 5, 2008 10:33 AM
bill said…
*Laughing* Sweetmind, we all have NO clue about what you are ranting. Only unhappy, insecure, paranoid people rant that way :o(

Val, I understand your point of view. I am on my vacation, in St. Louis, I see the uproar over DeafRead’s immature removal of Rachel’s blog. We all learned SO much from her and I for one appreciate it. I only hope that the human editors, especially Taylor, realize that Rachel represents the future of deaf people and I know it is scary for the deaf culture, but let’s face the fact…we need to embrace ALL kinds of people… respect or not. They all contribute to the society one way or another.

June 5, 2008 10:46 AM
Anne Marie said…
Valerie, 

Be rest assured you like many others do not carry that standoffish aura. Not at all..you no longer have to question that. 

I don’t know if you agree, I am more speculating at the problem of backing by corporate seeking for profit. It is not CI v.s. ASL although our raw nerves are backfiring all over with pains from years and years of oppression for years and years.

I remain resilient, my door still open only to anyone who simply show respect.

June 5, 2008 11:02 AM
MM said…
I’m profoundly deaf and so is my partner, I find it appalling there are some at deaf.read who declare “CI’ers are paying for the oppresion of deaf people”, why are they paying ? and who, is charging THEM with the oppresion ?

The biggest loser is us as deaf people, now Identified as Unable or unwilling to accept the diversity in others we demand for themselves. We’ve become hypocrits, and for some very sad people, this is a virtue ?

And they wonder why the deaf world is small and deaf people isolated,they aren’t exactly going out to break down barriers are they ? but setting up even bigger ones.

Spare a thought, those who want to dissapear into the brickwork, the rest of us don’t.

June 5, 2008 11:13 AM
Anne Marie said…
I am wondering why some people seem cannot grasp this point, it is too easy for dominant language to overtake language of minority culture. ASL language has yet to stabilize with economic and status power. Curriculum, standard, and resources for ASL in K-1 to K-12 (except ASL for foreign language requirement) are still yet to materialize enough to be more sustainable. 

This has least to do with embracing cultural diversity and amount of hearing - silence among us all.

June 5, 2008 12:47 PM
Anonymous said…
It is the truth that there are some very angry and bitter Deaf who have had bad experiences with their delayed language acquisition and subsequent poor educations, along with no or erratic employment. 

They are envious and jealous of those d/Deaf who have had better opportunities for language, education, and jobs. 

Yet some of these Deaf individuals point the finger of blame on those they are jealous of, people they don’t even know well, to pull down to their level. They have a lot of pain themselves and so lash out in anger and frustration.

It saddens me that these individuals don’t realize that by welcoming diversity in the d/Deaf community, we can ALL help to pull others up to a better level thru advocacy for all d/Deaf.

Val, I’ve read your blog many times but not commented much as my deaf experience is different from yours. I agree with you, there have been times I don’t agree with Rachel, but her blog is a stimulating resource of information and debate.

The other editors’ silence is deafening all right. Only JJ Puorro has said anything. I, too, will be interested to read what they have to say, if any of them break their silence, that is.

Ann_C

June 5, 2008 1:17 PM
J.J. said…
Valerie,

I have already posted on Ben’s blogsite saying that I was not going to respond anymore on this issue anywhere in the v/blogsphere…but am making an exception here again…

The reason is that I am only one person and I cannot personally comment on every blog. Also, the DeafRead Official Blog already outlines the reasons and I think that any questions should be directed to that blogsite to keep everything in one place. Otherwise, just E-mail me and I will answer your questions to the best of my ability.

-JJ

June 5, 2008 1:55 PM
Lane said…
To some commenters/readers…

Valerie doesn’t have this “better than you” attitude at all. I don’t remember seeing that sign of her on any of her posts and in our emails.

We email each other once in a while and she asked me about what’s the best way to learn ASL…what it’s like being deaf growing up…things like that. I can see she’s always eager to join the deaf community, even the “D” ones.

Valerie knows I can’t even talk at all, only my family members can understand me and she still want to be my friend.

Yet too often I see people like her facing road blocks which there’s actually no constructions ahead.

June 5, 2008 3:11 PM
Kim said…
Anne–I understand the pain as I’m sure you do too. The problem as I see it is whenever someone like Sweetmind blows up at a deaf blogger, everyone makes excuses for her, because she’s had a haaaard life being Deaf. We’re supposed to be so understanding. Yet– at the same time we’re supposed accept that being Deaf is a wonderful thing! Sweet mind sure exemplifies how happy she is! Riiiggght. These same people who make excuses for Sweetmind never stop to think what it’s like for the rest of us who also can’t hear. 

It’s time for her to stop feeling sorry for herself. She needs to move on like the rest of us.

June 5, 2008 3:43 PM
Anonymous said…
All I have to say about this whole thing that both sides need to stop putting each other down. I dont put CI users down but I dont appreciate some of them putting ASL and non-oral Deaf down and Rachel’s mother exhibited that attitude through some of her comments. I really feel it just alienated a lot of people here just as you are feeling alienated by Deafread. Maybe it is time to think twice about what we say about CIs, ASL, and those deaf who dont have oral skills?

June 5, 2008 4:02 PM
Candy said…
I’m with you. It’s as if all the human editor’s hands are tied for some reason.

June 5, 2008 4:15 PM
Anonymous said…
ChrisH said…. 

Kim

I think Sweetmind is senior. I hope she will embrace CI Deaf children. I have nothing against CI Deaf.

June 5, 2008 4:18 PM
Abbie said…
Lane, that was a super beautiful comment! 

Anon, 

I’m hoping you subscribed to these post. Besides Rachel with her position on AVT and not using ASL which can misinterpreted as a slap in the face to some, I want to know who else that has a CI that has put you down? You can remain anonymous but I want to hear some names.

The only reason I ask is because the small minority of CI users on deafread either use ASL or want to learn including Val and myself but people don’t see that or stop by our blog and ask that question. Just because we want to hear doesn’t mean we are against people who can’t. 

If more people would take the time and get to know one another, like Lane and Val have, you might be very surprised at what you see from us. You are going to get some people that are completely ignorant from time to time, this is life but those who chose to be ignorant shouldn’t ruin it for the rest of us.

June 5, 2008 4:22 PM
Anonymous said…
Exactly, Kim, I understand what you’re saying. As I’ve said elsewhere yesterday, many of us have had many hurts. There are some individuals who continue to blame others or some entity for their pain, like grudges. Others, like me, have learned to let go of the pain and move on with our lives, because life’s too damned short to go ’round blaming others for all the problems in our lives.

I’m not making excuses for Sweetmind and others, but it is a fact that there are some who nurse their pain well beyond what is normal, it turns into a lifetime attitude of rancor instead. They focus constantly on their problems with tunnel vision and don’t realize it is their attitude that colors their outlook on life and how others respond to them. 

It saddens me because it’s such a waste of energy and potential. Like spinning wheels in a rut. 

Ann_C

June 5, 2008 4:25 PM
Valerie said…
Lane,

Thank you so much for that comment. It put tears in my eyes. I look forward to our e-mails. I feel I can ask you anything and you never laugh at my silly questions. I cherish our friendship.

A real friendship never needs words.

Valerie

June 5, 2008 4:45 PM
Valerie said…
I am just getting home from a day out with my daughter. Hair cut and eyebrows done - the whole thing. 

I am surprised at the amount of people who stopped by. I look forward to the comments and how much heart is put into them. Where I agree or disagree, we all have a right to be heard. I understand others lifetime of growing up deaf and hardships they felt. I also spent a lifetime growing up deaf and have hardships too. Instead of viewing my hardships as the only way, I want to learn, embrace, and grow. 

My hurt has been over that fact that one of our community has been banned. I have said it before, I wrote it, I don’t agree with everything ANYONE said, but I don’t agree with her being banned. This letter to DeafRead Editors is to ask them to show up. Maybe even provide a state for unity. 

I am looking for my place within the d/Deaf Community. I want lifetime friends and a place to be accepted. Instead of editors I have people who care deeply for their views. I respect anyone who has the passion and fire I have. The only thing I ask is to respect each other and accept each other.

I love Lane’s comment: Yet too often I see people like her facing road blocks which there’s actually no constructions ahead.

Let’s keep open debate and build unity, not for me, I’m older than dirt, but for the HOH/deaf/Deaf children. They deserve a community that is accepting and loving.

June 5, 2008 5:00 PM
Anonymous said…
I hope many of you dont forget that the majority of the Deaf people in the Deaf community do not participate in DR and arent responsible for this. If people use this situation to label the Deaf community as discriminatory against CI users, they will be just as wrong as those few Deaf who do. Pls do not forget that. I am a Deaf ASL user who doesnt have a CI and is very much part of the Deaf community and I have no clue to what really happened here.

June 5, 2008 6:04 PM
Paula Rosenthal said…
Valerie, people like SweetMind come with the blogging territory. We all know we can’t please all of the people all of the time. It seems she has had an unfortunate past and like someone else here said, can’t seem to get past it. In a way, I feel sorry for her, but I don’t think blogs like ours are the place for her to rant and rage. Her anger is misplaced as we are not the ones who caused her wrongs. I stopped reading her comment after the first sentence.

That being said, I have a completely different take than most on this Tayler/DR fiasco. His banning of Rachel’s site was completely wrong, both in how he accomplished it and what his so called reasons were. Where I seem to differ from you and many other bloggers is that I don’t think he or DR are worth the time, energy and publicity everyone is giving him/it. He has proven time and again that he is not unbiased, nor is he rational or loyal to the many bloggers who keep his site hopping. He’s loyal to Sprint or at the very least, uses Sprint as an excuse to boot a terrific cochlear implant blog. He spends his time and efforts on creating ways to appease the culturally deaf community by his Deaf Extra, deafhood, ignore buttons and DeafSide issues. What has he ever done for oral or CI blogs? It is time for bloggers to wake up and realize there was a blogging life before DeafRead and there will be a blogging life and an audience after DeafRead should bloggers choose to leave the aggregator.

Keep up your wonderful blog and focus more on the great things you can offer the deaf and hoh community and parents and less on Tayler and DR.

June 5, 2008 6:16 PM
Seek Geo said…
Hi sweetmind,

I had a problem finishing your comment is because all I see is very angry comment. 

People coming to my blog screaming only because they disagree with me, do you really think I am gonna sit and listen? No way, I always welcome everyone’s point of view whether we agree or disagree and it’s always good to learn, some people actually change only if others offer their own point of view in a positive way. So you came in here screaming won’t do you any good, believe me.

I used to be like this and I regret every minute of it but glad I have changed for the better.

Hi Valerie, 

Don’t worry about some lame comments out there, you are a great person and so is many of others whether if they are deaf, CI, oral, etc. I always accept everyone regardless of their difference as long as we all respect each other. I gotta shout out to Lane, great comment!!

I understand that Rachel decided not to learn ASL which is unfortunate because I’d love to teach her and have her part of this wonderful community.

-SG

June 5, 2008 7:28 PM
mishkazena said…
Valerie

I don’t know what else I can say since Tayler and JJ pretty much said it all. One thing I want to say is that it makes me sad to see that many people think the issue is about the rejection of a blogger due to being a cochlear implantee when it’s not the case. I hope people do know that I have no issues with cochlear implants in general and am sincerely happy that some people love their C.I.s. 

You have a respectful attitude to Culturally Deaf people who use ASL.

June 5, 2008 7:49 PM
Anonymous said…
Anonymous above,

No, I don’t believe there are many of us out there blaming the ban of Rachel’s blog on the entire Deaf community, that’s not the case really.

It is DR’s editorship’s arbitrary cherry-picking of so-called, ambiguous guidelines as the furor goes and no due process (prior notification before pulling the feed plug) that are disturbing some bloggers on DR. The fact that Rachel’s blog, which is a CI blog, was banned raises several red flags about DR editorship’s biases. DR has a supposedly open and inclusive policy, but doesn’t practice what they preach very well. 

This doesn’t have anything to do with the Deaf community-at-large itself and many of us who are deaf but are not in the Deaf culture know that there are some in the Deaf culture who accept CIer’s, HOH, oral deaf because they are their friends, relatives , co-workers, etc. as well. There are some in the Deaf culture who practice what they preach better than DR.

I hope you understand, I’ve never put ASL or Deaf culture down even though I’m oral deaf and speak. Heavens, I know all too well what it’s like getting put-down by hearing people myself, even though I’m oral deaf. I’d never want to put another deaf person in HIS place, just because he prefers to sign and be part of Deaf culture. I accept that ASL and Deaf culture is a part of that Deaf person’s life and I’m not one to try and convert him to be something that wouldn’t be comfortable for him. By the same token, I’d like to be respected for my choices in life as well. 

Ann_C

June 5, 2008 9:39 PM
Jean Boutcher said…
Ann_C,

Glad to find you here. I lost you
after reading your comment wherein you said that there was a
blogger named something like Tom who was banned from DeafRead. Would you remember the title of his blog or even his blog URL? I would like to find out why he was
banned.

June 5, 2008 10:41 PM
Anonymous said…
Jean Boutcher,

Hi! I’m surprised you’re interested at all about Tom Willard’s blog, Tom’s Deaf Advocacy. 

The URL is http://tomwillard.wordpress.com.

I’ve tried to find out why DR banned his blog, but not much info forthcoming. He is a journalist but maintains this personal blog, the one he had on DR before the ban.

Perhaps you can find more info than I have. I don’t know if Tom has an email thru which to contact him.

BTW, your paintings are great. I had a lot of family matters to attend to at the time you posted some pictures of your work and I just didn’t have the time to respond then. I know that was a long time ago. Catch-up can be difficult sometimes.

Let me know if you have any probs finding Tom’s blog. Good luck sleuthing. :)

Ann_C

Ann_C

June 5, 2008 11:12 PM
OCDAC said…
My latest vlog pretty much sums it up whats going on. 

http://www.youtube.com/watch?v=xZNZtP54kw4

June 5, 2008 11:38 PM
peanut butter said…
This post has been removed by a blog administrator.
June 6, 2008 4:41 AM
Anonymous said…
Hey Valerie!

Finally, at last! It’s me, White Ghost. I think it’s my first time posting your blog. I *must* have got to know you better. :-)

I’m with you.

I am SO excited about having our famous, sense of humor, cutie pie to get the new aggregator.

What a shame that DR have made a huge, serious mistake…..that turns me off.

Take a visit:

http://deaflaw.wordpress.com/2008/06/05/goodbye-to-deafread

White Ghost

June 6, 2008 5:29 AM
Valerie said…
Done - I sent my e-mail to be removed from DeafRead. I appreciate JJ and Elizabeth stopping by and leaving comments. It means a lot to me. 

Remember I am not out to change the world, I just want to learn more about deafness, CIs and life. Along the way I made some awesome friends. 

Geo, It means so much for you to stop by and leave a comment. Abbie sings your praises! Keep that gal in line!!!!

White Ghost, I look forward to the silly stuff we can come up with.

June 6, 2008 5:45 AM
Anonymous said…
Valerie

Good bye to you.

June 6, 2008 7:28 AM
Anonymous said…
I still have a lot of respect of Tayler. He knows what he’s talking about. There are many readers out there don’t agree or agree. :-)

June 6, 2008 8:46 AM
David said…
Two things stuck out for this newbie to the deaf and ci world: 10 Sweetmind lost me about 15 paragraphs into their rambling, non nonsensical argument that was so much not an arugument, but more of a cut and paste of many ramblings I have seen in other comments. 
2) Lane makes such a class statement of fact and speaks volumes for Valarie’s point.
Valarie: thank you for being a class act in this issue.

June 6, 2008 9:18 AM
Lane said…
Valerie…

40 comments and counting!

Glad you and few others appreciated my comment.

Hope DeafRead site gets itself corrected soon.

June 6, 2008 7:22 PM
Karen Mayes said…
Hi, I am back from St. Louis and catching up…

*Shrug* about Sweetmind. She has her own anger which she seems to have a problem with letting go, but sometimes it serves a purpose for some people to go through their lives. If I am the subject of her anger, then I am glad that I somehow help her to live through her life, especially since she knows nothing about my life.

Val, that was a beautiful posting. 

It is a bit disturbing to see some bickering and the struggle of power over DeafRead, especially by commenters (DeafRead needs commenters to make it exist… not only v/bloggers.) DeafRead has become more exclusive lately and I am hoping that DeafRead’s human editors would step up to the plate to bring back the inclusivity (Deaf covers all spectrum of deaf people… even non-ASL CLers.) 

Well, we will find out soon enough.

June 7, 2008 6:21 AM
SweetMind said…
This post has been removed by a blog administrator.
June 7, 2008 10:19 AM
Valerie said…
Sweetmind - your not getting an audience from me. Why don’t you submit your blog to DeafRead. I hear they need your type of message. Ask for Tayler directly.

June 7, 2008 10:44 AM
SweetMind said…
NO thank you! ONe of few reasons are CRUEL HUMAN TREATMENT that I am getting for more than ten years from those same people who wants to get rid of me badly. I aint going anywhere because no one can stops me from who I am and want to say my own freedom of speech with respect if you care enough to understand what it means. 

two of few reasons are I DON’T KNOW HOW. PERIOD! I dont bother to try because of YOUR ATTITUDE that I dont want to be here anymore.. PERIOD! IT s very hurtful for me and many Deaf parents with CODA if you care enough to think twice before you are saying this to me with those degradation and my hardwork effort to improve my writings. 

Third of few reasons. I don’t like my own blogs because I cannot understand computer language if you care enough to know better than putting me down.. Scoffs!

I WORKED HARD to make it very positive reinforcement to educate many people that had been destroyed all along. That is our Deaf truth experiences and evidences in DeafNotes by those prejudicial attitudes in the past years. They lied for AUDISM s cruel human being that is severe mental illness. Now it’s nothing new here and other nasty sites that they don’t have any respect for Deaf ASLAN people or Deaf/CODA from many Deaf parents. So therefore you don’t have any respect in yourself that is so sad. 

I am going back to DeafNotes where my second home is that gives me more empowerment for those Deaf children s the rightful of having their natural abilities and adaptation from day one.

It s much safer to be in DeafNotes now because of restriction rules that I feel more relieved.. I truly regretted to be here with you guys but in other hands I am very grateful to show the true colors evidences that is very degradation behaviors going on here. :)

UP YOURS MEDICAL AND COCHLEAR IMPLANT COMPANY since this is not for Deaf babies who born deaf and Deaf babies with multi-handicaps. MIND YOU!

SO LONG!
SWEETMIND


 

Natural versus Man Made, which dangerous sides are we on?

 

Few nights I was looking at the many negative side effects of CI itself that causes more tripled disabilities for those Deaf babies/children or adults but more so on those Deaf children ’s right to protect their own health sakes from people who believe in Natural methods. I STILL don’t feel any parents should have their right to mess around with their Deaf children ’s body property that belongs to an individual not you or anybody else.  This is not a  death matter for Deaf children who are a legally deaf after they born or becoming deaf in early age or teenager ’s age without Hearing device. AND Cochlear Implant is the matter of Life and Death that includes a  real server problem with their health and CI mechanic killer. 

 

The reason is that Deaf community who are willing to welcome people (who have a faith in us all along) and educating  Deaf children who can learn how to deal with their  cope by or for being deaf and accept it as is.  There is no way to get rid of our Deaf impacts in our lives.  We should able to show the true natural abilities by our own true inner soul as is. We do not need to have Hearing people to have their own puppet or gueina pig to control your lives and decide what s the best for us after all, too many mistakes have been carried on and on for so many years  that NEEDS to be stopped for their self esteem’s sake to be take care of their own level of understandings first.  They don’t really know what they are doing it to us all along from day one. Sighs!

 

I found this Mishka Zena s blog. http://blog.deafread.com/mishkazena/2008/01/23/results-of-cochlear-implant-survey/ .  I agreed with her comments in some ways after all, I was attacked, abused or prevented to tell the truth that had been removed so many times by AUDISM people  who wants to destroy ASLan people so badly for ten years that I will never forget this happens to me and many other Deafies that has not changed a bit in a real life if you mind.  This is why I DON’T TRUST the Medical professionals, Hearing owner of their sites,   CI radicals, parents, and  some latened deaf and d/Deaf CIERS with a very stinky or negative attitudes.  I read some people s comment that turns me off about their own positive about their own cochlear implant that it doesn’t harm them at all. I don’t believe these people anymore because I had a surgery once and doesn’t go away with the pains for a while but it s still annoying in a way from where my surgery was applied to my own body. It was never the same conditional from the original one without the surgery. I can feel the difference if you mind.  Deaf people have their own sensitive feelings in their own bodies more than you do because we use the “feelings” to feel it if you care enough to listen to us, ASLan people who knows what they are saying it. As far as I am not talking about the emotional feelings. Thanks! Yeah, wait until few years or so this is going to be you that  will get a real problem with your health before you know it.

 

Also, the whole ten years on the internet , I am not impressed those Ci Radcials and the parents who have a very negative view of our being deaf Deaf school and many more as is.  They don’t want to use ASL from a start that has still keep going on and on for those Deaf children’s rightful to have ASL from a start. That’s why we have BI BI languages at first to have real communication between both sides. THIS IS ASL AND ENGLISH WRITTEN that is a huge equal communication between both sides.  I couldn’t believe how dare / selfish people keep Deaf children away from American Sign Language while Hearing children can have it.  American Sign Language is for Deaf children however, it will help Hearing children to have real communication with us Deaf people as well.  Why does it have to turn out into a very negative remark about our American Sign Language  or Deaf languages by these people who doesn’t have any faith in us, ASLan people and our natural abilities and adaptations.  Also, people forgot there are hearing people who couldnt speak but can hear as a natural hearing person. They have their right to have American Sign Language as well.  Dont take that away from them too if you mind.  Sighs!

 

American Sign Language or Deaf languages of the Deaf community that doesnt have any harmful or destroy our minds, body, and soul. It s more freely from getting any more damages or cost of money.. That is the only thing  Hearing people damaged our American Sign Language that was created more artificial languages that destroys our true native visual language.  That reminds me of what White Men did to Native American people and stole their lands and destroy their native true languages. And mind your own business since we have Deaf community that is a good reason for us to get gatherings between Deaf and Hearing people altogether as much as we can respect each other.  Some of them do not want to be part of Deaf community which is fine with me, however  leave us alone that works so well without having the lack of communicatioin that is coming from Hearing world.  Meanwhile we did wearing Hearing AID device that helps us to speak fair, good, and best speech that is typical for any Deaf people s lives. It’s not gonna to change for a better from Cochlear Implant device.   NO such thing about the best device after all, all of hearing devices are damaged to our Deaf ears that you will not able to FIX or CURE our Deafness as a secondary. SO BE IT!   We do not hear the spoken languages in a long run if you mind since you are wasting my time to find something that you can destroy everything that is many good causes for us to have without Hearing devices.  It is just all about money and fix your own emotional feelings that makes you feel better to be a Hearing wanna to be.  It is not always successful if you mind.  You will have to live with your own issues that you hate yourself as well. Scoffs!  

 

Deaf will be always deaf.   Face the Deaf Reality.  So be it!

 

It s  a real must have their HEARING STANDARDS that are the real double standards toward Deaf babies/children and adults for so many years.  That’s why I am so against those hearing devices since they do not respect you as a Deaf Human Beings from day one. They don’t respect your own natural abilities and adaptations from day one again.   They don’t give a hoot about us ASLan people after all those man-made is not helping you for having a better health.  They created us more problems into Medical health issue that is not a very positive outlook at all.

 

This is no misconception of Cochlear Implant issue that I’m giving it out at all if you mind. They think I am as they want to cover the truths as usual ..However, they are not being honest with you all along because they have their own CI device.. Whooppeee dooooo!  I don’t give a damn if you dont or do have CI device that are no difference behavior reactions between  Hearing Aid device and Cochlear Implant device if you mind. 

 

Soon , I will put all those health risk lists for those innocent Deaf babies/children who did not asking for it after the parents who thinks they have their own power to destroy their  babies/children s natural abilities/adaptation that has been damaged more than ever all along, too.  Then those Deaf children will have more severe problem into their health and loss of real communication as well. This is a real sickness behavior by those people who think they have their own rightful to conform or forcible toward their own Deaf children’s lives.  They don’t own them however, they should give them a good life with a reasonable education to teach in their childhood in a very positive reinforcement without having the negative impact toward Deaf community or our True Visual Language that is our Deaf languages of the Deaf community in this society.  Many of Deaf children did not know until they gets older and found out about the Safety of Natural abilities of the Deaf community  that is very total selfish  and not a very good reason to keep it secret all along.  That’s the issue of their own negative ATTITUDE as well.

 

Thank you for your time to read it.   ;)

 

SweetMind 

 

  • Now it s time to show the evidences that the articles has been removed quickly from their newspaper all along.. I have the copies to prove three Deaf human beings’ death that Deaf children and Latened deaf adult ’s death by CI devices itself . As far as I know there are more than 20 CI deaths already by the bottom of my heart with no doubts, however, I strongly knew that  they are hiding the fact of Death Warrant for a long time that has not been told by Medical professionals and FDA. 

  • What ’s so  good about CI device after having an surgery to repeat it two or three times if it sn’t working or is defective or  breakable.  That’s totally damage toward Deaf children ’s ears that has some natural sounds in their own deafness.  Scoff at ya!!!!  LEAVE OUR DEAF NATURAL SOUNDS ALONE!  What’s more if it ’s not working for any Deaf children that leaves CI device inside the human being’s head because Dr thinks it  s not a good idea to remove it.  It can kill you, too that had already happens to Deaf person as I knew the story that no one knew about it.  Nothing is safe for any human beings that should not be done inside our body without anyone s permission from a human being child, in a long run.  It should be ban immediately after too many deaths going on with Deaf children and adults.  

  •  It is not a lifetime guarantee for Deaf children to be a hearing person as a permanent after all it s robot is programming you and your mind as brainwash into a human being ’s mind if it s artificial hearing that becomes disorted the noise sounds as well.  It is too wasteful to have those death warrant and evil money that they profits from these  Deaf children or adults who are always be deaf as is. People need to face the Deaf reality and cope with their Deaf children and ASL.  GUESS WHAT, you make Deaf children into more DEAFER that is a real joke for you to damage our Deaf ears all along that does not fit  a SHADOW HEARING person into Deaf person because AUDISM ’s  Nasty / Negative ATTITUDE hasn’t bit changed about our ASLan people of the Deaf community  at all. They don’t understand or get it that is their issues  as well as I dont feel Medical professionals or Parents have their rightful to take over Deaf children ’s body property  that needs to have Deaf children’s  rightful to be protection for their own boundary lines. 

  • NO respect that has been very disrespectful toward Deaf babies/children ’s lives from day one.  DEAFNESS IS NOT A DISEASE itself while human being ’s mysterious organs that has damaged for some reasons. NO one can fix it or cure it..  Face the Deaf Reality.  Leave our Deafness as a secondary  alone if you mind.

  • Also, I STRONGLY don’t agree to have those Deaf children who have to deal with any hearing device so they have to depend on it like co-dependency on man-made  while Hearing people ruins Deaf children ’s natural abilities and adaption works for them  all along. That is very harmful to destroy Deaf babies/children’s own natural abilities/adaptation by their being deaf from day one.   Force them to hear while they cannot hear the spoken language itself that is very outrageous for any hearing people to conform and forcible toward Deaf babies/ children.  This is absolutely is very sickness behaviors by those Medical Professionals / Parents / Governments and many more.

  •  CI is full of HOAX and SCAM  that is all about the dirtying money that the CI company  are making a big profits from Deaf children all along. This is very cruel inhuman treatment toward Deaf children s plenty of  the plight of the suffering  that hasn’t stopped yet as usual.   CI devices are NOT REQUIRED for them have it that has  going on and on that is conformity and forcibly by the parents or Hearing professionals.  We , as  a former Deaf children with their experience with or without hearing devices who wants to stop this happens to any Deaf babies/children now.

  •  My strongest concern is that the ignorant parents need to chill out and should learn ASL for their Deaf children ’s rightful to have it from day one without depend on those Medical professionals who doesn’t have a good view of our Deaf children who will become an Deaf adult who will face the hardship of their attitudes.. Be  more respectful  of your Deaf children ’s  true natural abilities and adaptations that should come first  and first serve.  Deaf babies are not born to Medical Professionals and government that has no right to control and decide for each individual ’s lives in this society, if I have to remind you over and over again. Overall,  this is not a good  health for any Deaf children to have CI device itself after all those more and more additional of negative side of effects that Deaf babies/children who will have deal with the high Medical bills and  live with it for nothing. That is exactly what the ignorant parents did to these Deaf babies and children for nothing.  

  • The reason is  the parents believe everything in their own Medical/Religious cults world that we, a true natural born who struggled to stay out of their evil cults in a big time. What’s more the parents doesn’t listen to us Deaf people of the Deaf community with  a very positive outlook who tried to tell the truth  for so many years that has been prevent us, Deaf people’s outspoken from our true experiences that had been faced the hardships for nothing by Audism people  who did  this  all along for many years. That makes sense that it s a real DEATH WARRANT in their lifetime.  

  1.  Is it  the same concept of the  Versus  between Death Warrant and Deaf Warrant?  People thinks Deaf as Death, the way they pronoun the word for us to read their lips.  YEEEESSSS!!!!!!. SCOFFS at ya!
  2. Deaf will be always deaf.   So be it!
  3. Deafness is not a disease if you must know that.  So be it!
  4. . It s totally wrong to keep Deaf children away from other Deaf children  with ASL. So be it!
  5. We Deaf people,( not a hearing impaired) who do not hear the spoken languages with any devices if you mind.  It s more of brainwashing us to have those  memory that is not gonna to make a difference if you mind.
  6. You don’t know what it s like to be deaf from a start that is very wrongful for you to take over Deaf children’s deafness to damage  it for nothing again.
“Light of Love” in Deaf Visual Language of the Deaf Community ;)
    • It s time for us Deaf Advocates with a very positive outlook, who wants to work with Deaf Leaders who are willing to work harder for our Deaf children s best interest to be served their rights to have ASL in their classrooms in Deaf Schools. And, also, Deaf children have their rights to be protected their own will and boundary lines.  Time to stop  carrying on those children ’s abuse by these Audism people who doesn’t have any bright side about our ASLan ’s natural abilities since Alexander Graham Bell took over and is still with us that should get rid of the old behavior cycles and change their attitude tones toward ASLan people of the Deaf community.  As far as it goes for  Deaf community of their Deaf cultures in this society, too.  

    • Now it s time to take the action that we don’t want to wait for NAD to do something or depend on ADA that has been violated  our rights too many times for more than 20 years already that is  too long. We should support our Deaf student’s best interest  as much as we need to do something about it.  Think about it, Deaf people color of the Deaf community. 

    • Go to DeafNotes.com . There are a lot of informations about our Deaf International Visual languages from the Mother Nature world that we appreciate to give and share with people who have a faith in us and our Deaf Visual Languages from everywhere in Deaf community in our Deaf cultures. We should be proud of what we achieved in our survival life that is a hardship to face for not having our Rights from day one, we born with a true natural human being.   

    • For those Deaf people who work very hard while they don’t make money if you must know that. Thanks! Deaf people have a true soul, mind, and body that are the feelings of being natural for who we are. Deaf children can do anything except hear.  Deaf people need to have the Teamwork altogether that it should be done. I cannot do it alone however it’s time for you to wake up and do something for our Deaf Children s Education with BI-BI languages in their future. It’s a real equal access for both sides while we can learn ASL and English written altogether  so I don’t see why should we have all kind of those artificial languages that relates to a spoken language that you are expecting us to hear you and your spoken languages.  What a real outrageous that leaves Deaf children behind their visual languages that helps them to gain their intellectual skills and social motor skills in our receptive eyes to focus onto something for us to learn in our Brain System Works. It relates to our Deafness if you mind.   It s too much confusion for Deaf children do it all one at a time that is so unreal for you to do this to Deaf babies/ children from day one.  Sighs! 

    • After this,  I am going to post about this Deaf young gal who visited Deaf school and was so shocked nobody used ASL in Deaf school that is so unbelievable.  This is still going on that is what we deal with lack of communication in the past which  is still to be continued for those Deaf children who are not too happy without having ASL in the classrooms.  Come on, Wake up and listen to us Deaf people color of the Deaf community with a very positive outlook for or by being deaf as is.

    • Thank you for your time to read it.   ;)

    • Have a good weekend! ;)  
    ;)     “Light of Love” in our Deaf Visual Languages of the Deaf community   ;)

      http://www.iht.com/articles/ap/2008/03/04/news/China-Military-Budget.phpsyndicated views  (read it careful what it says on the url)

     

    This is real very interesting (258 in ASL) I found this article from this url,  however it disappears too quickly. Good thing, I can show the evidence that I have saved the url  but there is no more article since it removed so quickly  after I mentioned it in Death Warrant.  How 258!!!  After all,  I realized now there is something up to behind our back. I would have make a copy to show the evidence. Damn it!  because it s too late.   Sighs!   It’s somewhat scary to see a real thing in the future what I have read the article about having their strong military to be built up as it says they are using their miltary budget that means it s the  billions of dollars for their own preparation of a war without our knowledges. As far as I can see American people are sleepyhead and don’t even think about it twice before get the CI device.  Now it makes sense where all the money is coming from Cochlear Implant Device that they used Chinese people to work as the assembly in the factory in China/Australia.  They dont pay them very well  that explains it clearly so they make a biggest profit they ever make for China economy.

     

    Now,  how could the government afford to pay each child for it in other countries while USA are using the medicaid or medicare and any kind insurance monies that is gone up the  hike prices for us to pay for it. What the heck is this ?  Deaf children is ending up with all those Medical bills for CI itself that is full of it..  Deaf people can do anything except hear after all you knew that we do not hear their spoken languages. Dont you get it!!  I do not believe CI parent’ s story about their children (profoundly deaf) who had two CI devices with their own money from out of the pocket.. UMMpphh that s something.  What’s more I knew it s something not right about his situation for a long time.  Sighs!  This is a real something fishy going on.   He might be a Stockholder or the representative of CI company.

     

    Guess what, many of you are being so spoiled brat for having so much money that people invested their stocks to make dirtying money  on our Deaf children that is a real abuse toward disabilities as usual. That is a very good example of what the terrorist did it to two mentally challenger ladies that puts them on the bomb while they didn’t know any better.   They misused their disabilties as well as you are doing it to your Deaf children. That is a real sad for not having our rights to be protected by parents who are so innocent/ignorant and make a big mistake to make their own decision without Deaf children ’s right to have their own wills again and again.

     

     I do know some CI latened deaf or deaf oral people do make money with the stocks as they invested it for themselves and also, they are traveling around the cities or states to give the presentation about CI device. They are getting paid by CI corportation while they are not a honest qualification people to give the lecture as well.  That is other story.  That reminds me of any sites like Hearing Exchange….. that relates to CI issues as they think they know everything but N O T.  They brushed us Deafies off because we know the truth and stop them from telling people a lie about us ASLan of the Deaf community that is bad for Deaf children to be part of it.  Now you know  CI radicals and some CIers with a very stinky audist attitude who did this kind of childish behaviors to make it look bad for Deaf community for nothing all along as I had proved those evidences since I busted them real good.   ;)

     

     But that is okay,  I have other copy of their making money that has been boasted up from Cochlear Implant Device itself  real good from the other url.  It s so unbelievable what I saw it in my own eyes after I read it.  That gives me a real goose bump and makes me getting more serious and more concerns about it for any Deaf children’s protection that should come first and first serve.

     

    Things has happens to us lately with these lists that I could think of which leads into a machine killer that slows you into a death warrant certificate.

     

    1.  Crashed into our Twin Tall Buildings and Pentgon Buildings,  it s too late

    2. Anthrax killer that gives you a slow pace to die, it s too late

    3. CI machine killer  that gives you a slow pace to die , it s too late

     4. Now  they are using for their strong military.  Ummpphh!!!!  Well it s not too late to take the action to protect ourselves.  Sighs!  I hate this fricking politicial thing that is very unnecessary because it s all about Money , Power, and Religious cults.  Jeez!

     

    It s time for you to wake up and be alert.   Now stop using Deaf children as a puppet or guinea pig by the  Medical professional/ our and their government people.  I know people who are the civilian and are innocent  that we are trying to cope with our natural abilities and adaptation and  live on this Mother Nature to be friends with all kind of people without having the prejudicial or discrimination or hatred for a very stupid reason in man-made’ s world.

     

     Take your time to read and be more concerns  to think over it..  

     

    Thanks!  

     

    More to come :) 

     

    In the past years, I had posted three different of two latened deaf and deaf children with devices. So I am going to post these articles again to show the evidence that we millions of Deaf people do not understand you with our HA or CI devices alone that is nothing new from the past years until today.   I am going to post the first article.  http://news.independent.co.uk/people…icle360995.ece

     Quote:
    Personal Column: I’m good at being deaf As a teenager, artist Sophie Woolley started losing her hearing. But it doesn’t worry her
     
    Published: 30 April 2006
     
    People aren’t born deaf in my family: it happens later on. For my mother and my sister it was in their teens. I first noticed I was having problems aged 19. I was working as a waitress and would sometimes get the orders wrong. The chef shouted at me to get a hearing test and I did. The audiologist said I had a very slight loss but didn’t believe I had the family deafness.
     
    I didn’t think I would go deaf, but very, very gradually it’s got worse. I still don’t know whether I’m going to become profoundly deaf like my mum and sister, who both use sign language. My father isn’t deaf and now finger-spells the first letter of every word for me. I’m profoundly deaf in high frequencies and wear hearing aids. When people are speaking I hear the vowels well and have to try and fill in the gaps with lip reading and guesswork.
     
    When I’m lip-reading it takes a bit longer for my brain to process what people are saying. Sometimes I can see people looking slightly annoyed if I appear blank. I’m a performer of spoken-word monologues using mimicry and accents. A girl once came up to me after a show and said something, but I couldn’t understand her. She asked if I was drunk. It turned out she was trying to tell me I was a genius, but she just ended up insulting me instead. But for every one person I meet who can’t deal with my deafness I meet 10 who are brilliant about it.
     
    I’m lucky in that I established myself as a writer and performer when my hearing was still pretty good. I now use an interpreter in rehearsals and a stenographer will provide an instantaneous transcription when we’re working on scripts. Last year I toured Russia with the British Council giving creative writing workshops as well as performing.
     
    If I don’t tell people straight away that I’m deaf they think I’m being weird. I used to try and bluff my way through conversations, but it’s tiring and I end up looking weird anyway. Some people think I’m putting it on to wind them up as deafness is believed to be something that happens to older people and also because my speech is normal.
     
    My family has a really great attitude about deafness so I don’t worry about the future. It’s the day-to-day problems that crop up that do my head in sometimes. For example, if there’s an announcement on the train, I won’t know what’s going on. Sometimes, if I’m reading a book, I’ve ended up in the sidings.
     
    I also worry that people think I must fancy them because I’m staring at their lips a lot. So long as they don’t have a beard or talk with their mouth full, I can lip-read them and I don’t care what they think.
     
    I miss out on ambient conversation, so I organise my social life so I don’t put myself in situations where I’m at a dinner party with 15 people and everyone’s talking at all at once. My boyfriend learned to sign as soon as we started seeing each other. Sometimes I call him and just talk at him and don’t know what he’s saying back.
     
    The biggest change has been to my identity. I’m not the person I expected to be and have had to incorporate deafness into my personality. In my heart I’m still a hearing person, but as time goes by and as my hearing deteriorates, I am getting better at being deaf.
     
    If I have children, there’s a chance that they would inherit the gene, but I don’t want any at the moment as I’m so busy with my career. When my mother first married, a doctor told her to get sterilised because she would have deaf children, but she ignored them. I’m more concerned about having a ginger baby than a deaf one. I’m a strawberry blonde but used to be more ginger.
     
    Sophie Woolley was talking to Julia Stuart. Her touring one-woman show, ‘When To Run’, starts at the Edinburgh Festival in August with a finale at the Royal Festival Hall in December. For more information go to http://www.sophiewoolley.com. For information on deafness, hearing loss and tinnitus contact RNID’s information line on 0808 808 0123 or textphone 0808 808 9000 or visit http://www.rnid.org.uk Also in this section
     
    © 2006 Independent News and Media Limited

      

     Quote:
    World of noise proves too much for deaf teen to bear”It was so noisy and gave me such a headache,” Nanthaporn Kulpiyavaja, 19, said using sign language translated to words by her younger sister.
     
     Published on February 4, 2008
    Nanthaporn referred to the world she entered after receiving cochlea implants three years ago.
     
    Born profoundly deaf, Nanthaporn lived in a world with no voices until she was 16 when a public hospital doctor agreed to implant her with an artificial cochlea.
     
     Unfortunately, she didn’t believe she belonged to the new world of noise introduced to her which cost her parents almost Bt1 million. “I heard all the voices but did not know their meaning,” she reasoned as to why she prefers not to use an electronic device that assists her hearing.
     
     Cochlea implantation is regarded as a safe and effective treatment for the profoundly deaf. Besides an artificial cochlea that is implanted inside the patient’s ear, there is an external electronic device that sends sound-generated impulses directly to the brain and bypasses the flawed part of the inner ear.
     
    Nanthaporn, a second-year accountancy student at Rajabhat Institute Bansomdej Chao Phraya, could not remember how long she used the electronic device but is sure that the world of voices is not for her.
     
    Her father Preecha said he could never have imagined that his daughter would find her new world so noisy and disturbing.
     
    “I never thought that hearing voices would be my daughter’s problem. The doctor never informed us that she would not be able to understand the voices she heard. I believed that once my daughter could hear she would be automatically be able to communicate normally,” he said. 
     
    Before Nanthaporn had the cochlear implants, the family had to undertake a gruelling schedule of checks and tests for almost a year to make sure she was suitable for the treatment.
     
    “The doctor told us that she would hear everything and would have to train to improve her hearing skills and learn how to talk. What he didn’t mentioned was how difficult it would be for a 16-year-old girl who was born deaf to learn such skills,” he said.
     
     Preecha now understands that her daughter is not happy in a world of unintelligible voices and has allowed Nanthaporn to discard the device and abandon the hearing and speaking lessons.
     
    The case of Nanthaporn demonstrates the improper use of medical technology, said Dr Yot Teerawattananon, a senior researcher and programme leader of the Public Health Ministry’s Health Intervention and Technology Assessment Programme (HITAP). Yot said a doctor must first study carefully the implications for each individual before introducing any technology.
     
    “It doesn’t mean that one health technology can be applied to all patients that have the same problem or illness. A doctor must be ethical and use his judgement to introduce the right technology to the right patient,” he said.
     
    Yot said cochlear implantation was not the only health technology that was reported as being used improperly, which is why the country needs health-technology assessment.
     
    HITAP was set up last year to appraise a wide range of health technologies, including pharmaceutical and medical devices. Besides cochlea implants, HITAP is now conducting research into the practice of Caesarean sections.
     
    Preferring not to criticise the doctors who treated Nanthaporn, Dr Kiertiyos Komin, head of the Centre of Excellence in Otolaryngology at Rajavithi Hospital, said for children born deaf the cochlea implants would be beneficial only if they were implanted before the age of five and before they had learned to communicate with sign language. Adult or aged people could benefit from cochlea implants only if they were not born deaf but lost their hearing later.
     
    “It is very difficult for those who never heard a single voice in their life to enter into a world filled with voices. Having no hearing or speaking skills, they cannot understand the voices they hear and are unable to correctly pronounce words,” said Kiertiyos.
     
     In addition to age and hearing condition, Kiertiyos said the background and circumstances of a patient are part of his criteria when considering whether they would benefit from the device.
     
    Though Preecha spent almost Bt1 million for a device that is now useless, he does not cry over spilt milk.
     
     “At least she has a new life now as she is able to step out of the deaf community and live with normal people who don’t have a hearing problem,” he said.
     
    Preecha said that, after the implants, the doctor recommended he encourage Nanthaporn to study and spend time with normal people instead of studying in a deaf school. The doctor reasoned that living with normal people would drive her to improve her speech skills. With strong support from her family, Nanthaporn now lives a happy life as a deaf person in a world of voices.
     
    “If she hadn’t received an implant, no one would have recommended us to bring her out of the deaf community,” Preecha said optimistically.Pennapa HongthongThe Nation

     

    Deaf Mom ’s view

    This is how I strongly feel deaf babies/ children are not born to the MEDICAL professionals, however the parents failed to protect their Deaf children’s boundary as usual. This is not a freedom for being so against their Deaf babies/children’s rights and Deaf children ’s own will. 

     

    • It is one thing to allow a person to choose to use an auditory device, but i see that it is unfair to decide for any individual to have a surgery that changes their physical properties. Once a person is mature enough to decide to have a CI surgically implanted, the decision should be made. To have a parent/guardian etc.choose this for a child is ridiculous. Why should it be ok to force a person into a surgery that they may rely on for their entire life. 

    • Once a child has become accustomed to these devices it is something that they expect to have for the rest of their life. If the device fails or does not continue to work in the same way for their entire life, then they no longer can use what they have been expected to rely on. This is totally unfair to any child or adult. If they have the choice to decide whether to use an auditory device or not then they can make that decision for themselves. It is wrong to force anyone to depend on something when naturally they are not going to have that. Children cannot make that decision. They should have the choice to decide on adapting their physical properties on their own. This should not take place unless they have been fully educated on ALL of the possibilities…positive and negative.

    •  If a child relies on the auditory device and then it suddenly isn’t working anymore, then it is something that they have no choice but to have taken from them. These surgeries are not inexpensive. It takes money to maintain these devices and not all people are able to keep up with this. What happens when a child decides that they do not want to utilize this technology? 

    • It is wrong to force a person to rely on something each day, when naturally they may be better off without a device being implanted into their bodies. Insurance does not cover a CI removal. If a person chooses that route then more power to them,but it is not an issue that should be decided by a person that will not have to live with it. The person that is getting a surgery of this type or any other surgery should be allowed to choose for themselves. It is something that will have impact, whether positive or negative, a person for the rest of their life. 

    • By forcing an individual into a life altering procedure it is the same as saying you are not “good” enough the way that you were born. You must change physically for you to be accepted by the real world. Is this really the impression we want to make on deaf children. 

    • It is a huge put down to deaf childrens true identity. People must have a choice, it is only fair! We should appreciate the differences in all people. If we were all the same, then the world would be a very boring place. 

    •  Therefore, we have the right to maintain the status we were born with…people need to learn to accept that. Any adaptation that needs to be made should be made within the faultfinders, not the children. Acceptance is KEY! Need I say more?

    •  “Tell the mothers I said, “Don’t try to change your child; you are the adult, you bear the burden of change” - Harlan Lane Thats what it needs to get through your head.

    •  Seeing as how there are more cons than pros to getting a CI,( as such stated in other topics), It is more responsible to NOT implant a child. You dont need to hear to be alive. And if a d/Deaf child is not good enough for you then you need to reconsider your morals and prejudices. Like it, love it, or leave it alone.  

    • Thank you! Sweetmind
    •  “Light of Love” in Deaf Visual Languages of the Deaf community ;\)


     

    I don’t trust Dr or Medical Professionals and their philosophy views. I can see this is a real that we are dealing with those communist people who made this while we are living in USA.  Now it s your and y