World of noise proves too much for deaf teen to bear”It was so noisy and gave me such a headache,” Nanthaporn Kulpiyavaja, 19, said using sign language translated to words by her younger sister.
Published on February 4, 2008
Nanthaporn referred to the world she entered after receiving cochlea implants three years ago.
Born profoundly deaf, Nanthaporn lived in a world with no voices until she was 16 when a public hospital doctor agreed to implant her with an artificial cochlea.
Unfortunately, she didn’t believe she belonged to the new world of noise introduced to her which cost her parents almost Bt1 million. “I heard all the voices but did not know their meaning,” she reasoned as to why she prefers not to use an electronic device that assists her hearing.
Cochlea implantation is regarded as a safe and effective treatment for the profoundly deaf. Besides an artificial cochlea that is implanted inside the patient’s ear, there is an external electronic device that sends sound-generated impulses directly to the brain and bypasses the flawed part of the inner ear.
Nanthaporn, a second-year accountancy student at Rajabhat Institute Bansomdej Chao Phraya, could not remember how long she used the electronic device but is sure that the world of voices is not for her.
Her father Preecha said he could never have imagined that his daughter would find her new world so noisy and disturbing.
“I never thought that hearing voices would be my daughter’s problem. The doctor never informed us that she would not be able to understand the voices she heard. I believed that once my daughter could hear she would be automatically be able to communicate normally,” he said.
Before Nanthaporn had the cochlear implants, the family had to undertake a gruelling schedule of checks and tests for almost a year to make sure she was suitable for the treatment.
“The doctor told us that she would hear everything and would have to train to improve her hearing skills and learn how to talk. What he didn’t mentioned was how difficult it would be for a 16-year-old girl who was born deaf to learn such skills,” he said.
Preecha now understands that her daughter is not happy in a world of unintelligible voices and has allowed Nanthaporn to discard the device and abandon the hearing and speaking lessons.
The case of Nanthaporn demonstrates the improper use of medical technology, said Dr Yot Teerawattananon, a senior researcher and programme leader of the Public Health Ministry’s Health Intervention and Technology Assessment Programme (HITAP). Yot said a doctor must first study carefully the implications for each individual before introducing any technology.
“It doesn’t mean that one health technology can be applied to all patients that have the same problem or illness. A doctor must be ethical and use his judgement to introduce the right technology to the right patient,” he said.
Yot said cochlear implantation was not the only health technology that was reported as being used improperly, which is why the country needs health-technology assessment.
HITAP was set up last year to appraise a wide range of health technologies, including pharmaceutical and medical devices. Besides cochlea implants, HITAP is now conducting research into the practice of Caesarean sections.
Preferring not to criticise the doctors who treated Nanthaporn, Dr Kiertiyos Komin, head of the Centre of Excellence in Otolaryngology at Rajavithi Hospital, said for children born deaf the cochlea implants would be beneficial only if they were implanted before the age of five and before they had learned to communicate with sign language. Adult or aged people could benefit from cochlea implants only if they were not born deaf but lost their hearing later.
“It is very difficult for those who never heard a single voice in their life to enter into a world filled with voices. Having no hearing or speaking skills, they cannot understand the voices they hear and are unable to correctly pronounce words,” said Kiertiyos.
In addition to age and hearing condition, Kiertiyos said the background and circumstances of a patient are part of his criteria when considering whether they would benefit from the device.
Though Preecha spent almost Bt1 million for a device that is now useless, he does not cry over spilt milk.
“At least she has a new life now as she is able to step out of the deaf community and live with normal people who don’t have a hearing problem,” he said.
Preecha said that, after the implants, the doctor recommended he encourage Nanthaporn to study and spend time with normal people instead of studying in a deaf school. The doctor reasoned that living with normal people would drive her to improve her speech skills. With strong support from her family, Nanthaporn now lives a happy life as a deaf person in a world of voices.
“If she hadn’t received an implant, no one would have recommended us to bring her out of the deaf community,” Preecha said optimistically.Pennapa HongthongThe Nation
46 comments:
Richard
Rachel agreed that the cochlear implant wording of the advertisement is necessarily offensive and it is changed. She is trying to hide her identity Deaf.
Rachel called for helping because she threw her the Deafread. She is accusing deafread of discriminating cochlear implant. She never proved to the world she is still deaf without cochlear implant.
I am sorry that I am not interested into becoming involved with CI deaf politics. I don’t blame on Rachel.
So therefore I have no respect for some CIers with a stinky nasty attitude so they did it to themselves and don’t have any respect for any Deaf ASLAN people from day one that we born. Scoffs!
Mike Mc Connell, Jodie, Karen Mayes, Paula from hearing exchange and their own cult followers who OPPRESSED Me very badly that I already showed the evidences as far as I can you don’t give a hoot about it. They lied about me as well as they get away with it that is just like the rest of their cult followers who doesn’t have any great self esteem in themselves as well,That is who destroy deafnotes, deafchat, Deaf business, and the Deaf Leaders/Advocators/Deaf supporters.
NOTHING IS GOOD ABOUT BEING DEAF or having Deaf ASLAN people on this earth that hasn’t stopped it yet. That is what I am seeing it all my freaking life that you think I am happy with it.. HELL NO , I’ll stand up for what I strongly believe and fight for my and Deaf’s freaking rights.. Guess what, I got fired from job twice and walked out two jobs twice, and few jobs I quit as I fed up.. I am not ashamed because I knew I didnt do anything wrong in many ways. I could have become a RICH lady after I have too many violation laws by these people who doesnt have any respect for a Deaf person who could not hear the spoken language if you MIND.. Dont give me that crapola about CI device, it can help Deaf babies/children to hear. That s all full of crappola stories about miracle and cure from a start.
So are you telling me I am freaking Deaf lazy person.. IF so then up yours.
Yeah, try to wipe me and my comments out that is your easy way out to disrespect my freedom of speech with respect as usual. Scoffs!
CI is full of hoax and destroy our Deaf community s image on purpose as I can see it already that is not a big lie.. I already have those evidences . That’s why I don’t believe every word you have said. All they do is LIES LIES LIES LIES that will not change my mind because I knew the honest truth with me all along. Go kiss Cloggy, Rick48 aka CI pop, Boult as Ed Cantrell, Alex Chu’s bun who loves to destroy me as a Deaf person with HA experiences that I told the truth. I can speak and now refused to speak anymore because it causes me more problem with those AUDISM people who mislead and lied about me, my Deaf ears, and my own deaf voices that is not helpful for 65 percent of born deaf as is. I am able to hear but now I choose not to hear anymore because NO ONE ACCEPT ME as A Deaf Person so therefore it s too much lies about hearing devices for Deaf babies/children that I had been wearing it all my life that destroys me a completely whole person by YOUR OWN STINKY HUMAN CRUEL TREATMENT. Thats what it makes me anger to see the same old freaking nasty/cruel/oppression/discrimination/second class citizen/bigotry attitudes.
I strongly FEEL THAT AUDISM must out of Deaf community first. No more destroy our natural abilities and adaption of being deaf as is.
QUIT whiner as I m seeing a lot lately that turns me off.. NOthing is successful for us to work together as well as I can see AGB organization and CI company wants this way and laugh at us because you are a big sucker and kiss their buns for their riches to make money and for yourself only. It is not a lifetime that makes you happy while you are the co dependency with those stupid junk devices.
Deaf people trapped into a black hole as always as I don’t see any improvement to respect any kind of Deaf people who born deaf as is. That is the biggest oppression and discrimination toward us for so many years.
NO ADA helps us all along since 1980 that hasn’t been changed much at all.
Take a chill pill , will you please?
It doesn’t matter anymore if I m or am not a nice or person that i m still getting the same inhuman cruel treatment from you Deafism/CIers/Audism ’s attitudes. PERIOD! I m different from many of you that I have always know that all my life.
SCOFFS! NESMUTH aka RICHARD ROHEM and TOM WILLARD, CIERS and CI Radicals with a big time of being so negative AUDISM . Time for you to grow up. Face the Deaf reality!
I RESPECT Deaf babies/children ’s rightful to have ASL and must do something about the damage of the whole Deaf babies and children s boundary that needs to be stopped since it s their own against Deaf babies/children s will. NO ONE HAS THE RIGHT TO conform/force them into a hearing children that is not gonna to be respectful at all for the rest of their life.
I am seeing People with their own audist attitudes are screwing up their heads as usual. Thats why I am here to say something very bluntly because It s outrageous and nonsense. Also, people refused to accept the truth that is what I will not accept their severe mental illness, AUDISM thinks they can control us. NO way jose for me to deal with this anymore. SO BE IT!.
DENIAL is the issue that you are having in your own Deaf inner soul all along.
Get a life!
SweetMind
Their reactions and strong opinions are warranted, but I am so sorry that the CI Deaf community has to take the blow from some of our kind.
You CI people including my son are paying the price for decades of oppression among my people. I am so sorry. But keep your chins up high and weather the storm.
Warranted, Rachel’s attitude is a bit standoffish. She has that aua that she is “better than us the non-speaking Deaf”. So what! There are a whole bunch of ASL Deaf in my comunity who are such snobs, narrowminded, mean, and definitely think they are better than the oralists.
Tayler and the DeafRead gang has wronged both sub communities within th greater d/Deaf community.
Tayler has made history by practicing soft bigotry despite his denials.
Keep your chins up and don’t give up on us as there are many wonderul culturally Deaf people who embrace you!
anna s
How’s that? Would that make you feel better?
Anna S,There are whole bunches of CI Deaf in your community who are such snobs, narrow-minded, mean, and definitely think they are better than ASL user.
You fail to teach your son how to use your voice because you are still Deaf and still ASL. I am sorry for your son didn’t choose CI when he is too young. I thanked to Matt Hamill is very skill at playing in mixed martial arts game when he doesn’t need to wear a helmet.
This has nothing to do with ASL and Deaf community. you chose to hurt Deaf community.
Have I ever expressed myself to be “better than everyone else?” I am not for CI, D/d politics. I am embracing my deafness. These comments cause great pain.
Do you have this comment on cut and paste? I have seen this before and before. I am living my life, you need to either come up with something new or you get a life.
I am feeling so much pain from this as well. I don’t see this as a CI against Deaf thing as much as “deaf” are unequal, disrespected, and not at all valued here. I’m right there with you. I had hoped the DeafRead editors would speak up. Their silence hurts more than Tayler’s action.
You tend to lose your point when you ramble on the way you do. By the time I read the third line of your comment I forget what you said.
This has nothing to do with deaf babies or ASL or the ADA law or cochlear implants! This is about Tayler and his asinine and hidden policies on Deafread.
Now my dear Valerie,
This is the way that it is done in the real world. People agree to disagree based on opinions but most of the time they don’t change their opinion of the person that they are. There is some people in my family I don’t care for but if they needed I’m there because i’m family. Same way here!
I’ve read again and again how bitter so many deaf people are that their hearing parents didn’t integrate them into the Deaf community, don’t use ASL at home, or that some scary amorphous monster named agbad infiltrated their schools or their parent’s minds and stopped them from signing. They learned well: Deafread has now become the big bad monster slamming the door on hearing parents and their deaf children who might otherwise be exposed to ASL, to deaf culture, to other deaf people.
Valerie, I agree with your post completely! I don’t agree with its hard-line AVT philosophy, but Rachel’s site is a valuable resource and a great place to engage in the debate and learn from one another. And banning Rachel’s site is deafread’s loss: every day it reaches many, many parents of newly diagnosed deaf children who may now not come in contact with some of the amazing deaf b/vloggers.
I’m so eager to see how the editors respond to your question — I just don’t want to believe that they would sit by and watch Deafread close a door to a great big room filled with new parents considering CIs or those considering educational options, and limiting the opportunity to reach those people with the possibilities afforded by learning ASL.
Val, I understand your point of view. I am on my vacation, in St. Louis, I see the uproar over DeafRead’s immature removal of Rachel’s blog. We all learned SO much from her and I for one appreciate it. I only hope that the human editors, especially Taylor, realize that Rachel represents the future of deaf people and I know it is scary for the deaf culture, but let’s face the fact…we need to embrace ALL kinds of people… respect or not. They all contribute to the society one way or another.
Be rest assured you like many others do not carry that standoffish aura. Not at all..you no longer have to question that.
I don’t know if you agree, I am more speculating at the problem of backing by corporate seeking for profit. It is not CI v.s. ASL although our raw nerves are backfiring all over with pains from years and years of oppression for years and years.
I remain resilient, my door still open only to anyone who simply show respect.
The biggest loser is us as deaf people, now Identified as Unable or unwilling to accept the diversity in others we demand for themselves. We’ve become hypocrits, and for some very sad people, this is a virtue ?
And they wonder why the deaf world is small and deaf people isolated,they aren’t exactly going out to break down barriers are they ? but setting up even bigger ones.
Spare a thought, those who want to dissapear into the brickwork, the rest of us don’t.
This has least to do with embracing cultural diversity and amount of hearing - silence among us all.
They are envious and jealous of those d/Deaf who have had better opportunities for language, education, and jobs.
Yet some of these Deaf individuals point the finger of blame on those they are jealous of, people they don’t even know well, to pull down to their level. They have a lot of pain themselves and so lash out in anger and frustration.
It saddens me that these individuals don’t realize that by welcoming diversity in the d/Deaf community, we can ALL help to pull others up to a better level thru advocacy for all d/Deaf.
Val, I’ve read your blog many times but not commented much as my deaf experience is different from yours. I agree with you, there have been times I don’t agree with Rachel, but her blog is a stimulating resource of information and debate.
The other editors’ silence is deafening all right. Only JJ Puorro has said anything. I, too, will be interested to read what they have to say, if any of them break their silence, that is.
Ann_C
I have already posted on Ben’s blogsite saying that I was not going to respond anymore on this issue anywhere in the v/blogsphere…but am making an exception here again…
The reason is that I am only one person and I cannot personally comment on every blog. Also, the DeafRead Official Blog already outlines the reasons and I think that any questions should be directed to that blogsite to keep everything in one place. Otherwise, just E-mail me and I will answer your questions to the best of my ability.
-JJ
Valerie doesn’t have this “better than you” attitude at all. I don’t remember seeing that sign of her on any of her posts and in our emails.
We email each other once in a while and she asked me about what’s the best way to learn ASL…what it’s like being deaf growing up…things like that. I can see she’s always eager to join the deaf community, even the “D” ones.
Valerie knows I can’t even talk at all, only my family members can understand me and she still want to be my friend.
Yet too often I see people like her facing road blocks which there’s actually no constructions ahead.
It’s time for her to stop feeling sorry for herself. She needs to move on like the rest of us.
Kim
I think Sweetmind is senior. I hope she will embrace CI Deaf children. I have nothing against CI Deaf.
Anon,
I’m hoping you subscribed to these post. Besides Rachel with her position on AVT and not using ASL which can misinterpreted as a slap in the face to some, I want to know who else that has a CI that has put you down? You can remain anonymous but I want to hear some names.
The only reason I ask is because the small minority of CI users on deafread either use ASL or want to learn including Val and myself but people don’t see that or stop by our blog and ask that question. Just because we want to hear doesn’t mean we are against people who can’t.
If more people would take the time and get to know one another, like Lane and Val have, you might be very surprised at what you see from us. You are going to get some people that are completely ignorant from time to time, this is life but those who chose to be ignorant shouldn’t ruin it for the rest of us.
I’m not making excuses for Sweetmind and others, but it is a fact that there are some who nurse their pain well beyond what is normal, it turns into a lifetime attitude of rancor instead. They focus constantly on their problems with tunnel vision and don’t realize it is their attitude that colors their outlook on life and how others respond to them.
It saddens me because it’s such a waste of energy and potential. Like spinning wheels in a rut.
Ann_C
Thank you so much for that comment. It put tears in my eyes. I look forward to our e-mails. I feel I can ask you anything and you never laugh at my silly questions. I cherish our friendship.
A real friendship never needs words.
Valerie
I am surprised at the amount of people who stopped by. I look forward to the comments and how much heart is put into them. Where I agree or disagree, we all have a right to be heard. I understand others lifetime of growing up deaf and hardships they felt. I also spent a lifetime growing up deaf and have hardships too. Instead of viewing my hardships as the only way, I want to learn, embrace, and grow.
My hurt has been over that fact that one of our community has been banned. I have said it before, I wrote it, I don’t agree with everything ANYONE said, but I don’t agree with her being banned. This letter to DeafRead Editors is to ask them to show up. Maybe even provide a state for unity.
I am looking for my place within the d/Deaf Community. I want lifetime friends and a place to be accepted. Instead of editors I have people who care deeply for their views. I respect anyone who has the passion and fire I have. The only thing I ask is to respect each other and accept each other.
I love Lane’s comment: Yet too often I see people like her facing road blocks which there’s actually no constructions ahead.
Let’s keep open debate and build unity, not for me, I’m older than dirt, but for the HOH/deaf/Deaf children. They deserve a community that is accepting and loving.
That being said, I have a completely different take than most on this Tayler/DR fiasco. His banning of Rachel’s site was completely wrong, both in how he accomplished it and what his so called reasons were. Where I seem to differ from you and many other bloggers is that I don’t think he or DR are worth the time, energy and publicity everyone is giving him/it. He has proven time and again that he is not unbiased, nor is he rational or loyal to the many bloggers who keep his site hopping. He’s loyal to Sprint or at the very least, uses Sprint as an excuse to boot a terrific cochlear implant blog. He spends his time and efforts on creating ways to appease the culturally deaf community by his Deaf Extra, deafhood, ignore buttons and DeafSide issues. What has he ever done for oral or CI blogs? It is time for bloggers to wake up and realize there was a blogging life before DeafRead and there will be a blogging life and an audience after DeafRead should bloggers choose to leave the aggregator.
Keep up your wonderful blog and focus more on the great things you can offer the deaf and hoh community and parents and less on Tayler and DR.
I had a problem finishing your comment is because all I see is very angry comment.
People coming to my blog screaming only because they disagree with me, do you really think I am gonna sit and listen? No way, I always welcome everyone’s point of view whether we agree or disagree and it’s always good to learn, some people actually change only if others offer their own point of view in a positive way. So you came in here screaming won’t do you any good, believe me.
I used to be like this and I regret every minute of it but glad I have changed for the better.
Hi Valerie,
Don’t worry about some lame comments out there, you are a great person and so is many of others whether if they are deaf, CI, oral, etc. I always accept everyone regardless of their difference as long as we all respect each other. I gotta shout out to Lane, great comment!!
I understand that Rachel decided not to learn ASL which is unfortunate because I’d love to teach her and have her part of this wonderful community.
-SG
I don’t know what else I can say since Tayler and JJ pretty much said it all. One thing I want to say is that it makes me sad to see that many people think the issue is about the rejection of a blogger due to being a cochlear implantee when it’s not the case. I hope people do know that I have no issues with cochlear implants in general and am sincerely happy that some people love their C.I.s.
You have a respectful attitude to Culturally Deaf people who use ASL.
No, I don’t believe there are many of us out there blaming the ban of Rachel’s blog on the entire Deaf community, that’s not the case really.
It is DR’s editorship’s arbitrary cherry-picking of so-called, ambiguous guidelines as the furor goes and no due process (prior notification before pulling the feed plug) that are disturbing some bloggers on DR. The fact that Rachel’s blog, which is a CI blog, was banned raises several red flags about DR editorship’s biases. DR has a supposedly open and inclusive policy, but doesn’t practice what they preach very well.
This doesn’t have anything to do with the Deaf community-at-large itself and many of us who are deaf but are not in the Deaf culture know that there are some in the Deaf culture who accept CIer’s, HOH, oral deaf because they are their friends, relatives , co-workers, etc. as well. There are some in the Deaf culture who practice what they preach better than DR.
I hope you understand, I’ve never put ASL or Deaf culture down even though I’m oral deaf and speak. Heavens, I know all too well what it’s like getting put-down by hearing people myself, even though I’m oral deaf. I’d never want to put another deaf person in HIS place, just because he prefers to sign and be part of Deaf culture. I accept that ASL and Deaf culture is a part of that Deaf person’s life and I’m not one to try and convert him to be something that wouldn’t be comfortable for him. By the same token, I’d like to be respected for my choices in life as well.
Ann_C
Glad to find you here. I lost you
after reading your comment wherein you said that there was a
blogger named something like Tom who was banned from DeafRead. Would you remember the title of his blog or even his blog URL? I would like to find out why he was
banned.
Hi! I’m surprised you’re interested at all about Tom Willard’s blog, Tom’s Deaf Advocacy.
The URL is http://tomwillard.wordpress.com.
I’ve tried to find out why DR banned his blog, but not much info forthcoming. He is a journalist but maintains this personal blog, the one he had on DR before the ban.
Perhaps you can find more info than I have. I don’t know if Tom has an email thru which to contact him.
BTW, your paintings are great. I had a lot of family matters to attend to at the time you posted some pictures of your work and I just didn’t have the time to respond then. I know that was a long time ago. Catch-up can be difficult sometimes.
Let me know if you have any probs finding Tom’s blog. Good luck sleuthing.
Ann_C
Ann_C
http://www.youtube.com/watch?v=xZNZtP54kw4
Finally, at last! It’s me, White Ghost. I think it’s my first time posting your blog. I *must* have got to know you better.
I’m with you.
I am SO excited about having our famous, sense of humor, cutie pie to get the new aggregator.
What a shame that DR have made a huge, serious mistake…..that turns me off.
Take a visit:
http://deaflaw.wordpress.com/2008/06/05/goodbye-to-deafread
White Ghost
Remember I am not out to change the world, I just want to learn more about deafness, CIs and life. Along the way I made some awesome friends.
Geo, It means so much for you to stop by and leave a comment. Abbie sings your praises! Keep that gal in line!!!!
White Ghost, I look forward to the silly stuff we can come up with.
Good bye to you.
2) Lane makes such a class statement of fact and speaks volumes for Valarie’s point.
Valarie: thank you for being a class act in this issue.
40 comments and counting!
Glad you and few others appreciated my comment.
Hope DeafRead site gets itself corrected soon.
*Shrug* about Sweetmind. She has her own anger which she seems to have a problem with letting go, but sometimes it serves a purpose for some people to go through their lives. If I am the subject of her anger, then I am glad that I somehow help her to live through her life, especially since she knows nothing about my life.
Val, that was a beautiful posting.
It is a bit disturbing to see some bickering and the struggle of power over DeafRead, especially by commenters (DeafRead needs commenters to make it exist… not only v/bloggers.) DeafRead has become more exclusive lately and I am hoping that DeafRead’s human editors would step up to the plate to bring back the inclusivity (Deaf covers all spectrum of deaf people… even non-ASL CLers.)
Well, we will find out soon enough.
two of few reasons are I DON’T KNOW HOW. PERIOD! I dont bother to try because of YOUR ATTITUDE that I dont want to be here anymore.. PERIOD! IT s very hurtful for me and many Deaf parents with CODA if you care enough to think twice before you are saying this to me with those degradation and my hardwork effort to improve my writings.
Third of few reasons. I don’t like my own blogs because I cannot understand computer language if you care enough to know better than putting me down.. Scoffs!
I WORKED HARD to make it very positive reinforcement to educate many people that had been destroyed all along. That is our Deaf truth experiences and evidences in DeafNotes by those prejudicial attitudes in the past years. They lied for AUDISM s cruel human being that is severe mental illness. Now it’s nothing new here and other nasty sites that they don’t have any respect for Deaf ASLAN people or Deaf/CODA from many Deaf parents. So therefore you don’t have any respect in yourself that is so sad.
I am going back to DeafNotes where my second home is that gives me more empowerment for those Deaf children s the rightful of having their natural abilities and adaptation from day one.
It s much safer to be in DeafNotes now because of restriction rules that I feel more relieved.. I truly regretted to be here with you guys but in other hands I am very grateful to show the true colors evidences that is very degradation behaviors going on here.
UP YOURS MEDICAL AND COCHLEAR IMPLANT COMPANY since this is not for Deaf babies who born deaf and Deaf babies with multi-handicaps. MIND YOU!
SO LONG!
SWEETMIND